Sharing sensitive data securely and ethically
Which legal and ethical requirements do researchers have to consider when using data from external sources? What about data protection, privacy, etc.? For an individual researcher it is almost impossible to be informed and knowledgeable about all of the issues involved, especially when this is not their daily business. At the same time, consulting experts in order to get this information can be a time consuming process. To support researchers in identifying legal and ethical requirements connected to sensitive data BioMedBridges partners have developed an online tool, which is based on a thorough analysis of the regulatory landscape in Europe conducted in the first project year.
Informed by the identified formal requirements for secure and ethical data sharing and based on a number of use cases within the project, including personalised medicine data, BioMedBridges is putting appropriate safeguarding (data protection and data security) mechanisms in place.